Living with something chronic
Living with gastroparesis
Managing gastroparesis means tracking symptoms, food, medications, and a lot of appointments. Here's how to keep all of it organized in one place.
Start tracking →Managing gastroparesis is largely a data problem. Symptoms fluctuate with what you ate, when you ate it, how much, which medications were on board, and factors nobody has isolated yet — and the only person who can see the whole pattern is you. Appointments are frequent and spread across gastroenterology, nutrition, and often pain management, each seeing a slice. Meanwhile the practical load is constant: tracking what you tolerated, managing nausea medication timing, keeping nutrition supplies stocked, and arriving at appointments able to describe months of fluctuation in a few minutes. Organized.health is built for that load. Symptoms log in one tap, so a bad week gets recorded during the bad week. Medications log by tapping the bottle. Records from every provider land in one place instead of three portals. The goal isn't to treat gastroparesis — it's to stop the administration of it from consuming the energy you need for everything else.
Why we know this
Gastroparesis is one of co-founder Salicia Ford's diagnoses. The tracking in this app was shaped by managing it, not by researching it.
Read our story →Tracking symptoms when they shift daily
Gastroparesis rarely presents the same way twice in a week, which makes it hard to answer the question every appointment opens with: how have things been? Answering from memory tends to average out the extremes, and the extremes are the clinically useful part.
One-tap logging exists so that entries happen on the days you feel worst, not just on the days you feel organized. Over months, the trend view shows whether things are genuinely improving or whether a good fortnight is masking a downward slope.
Medication timing is most of the management
Prokinetics and antiemetics work on timing relative to meals, which means the log needs to capture when you took something, not just that you did — and it needs to capture the doses you skipped because you were too nauseated to keep them down.
Skipped and adjusted doses are recorded as such, because a prescriber changing your regimen needs to know the difference between a drug that didn't work and a drug you couldn't take.
Nutrition supplies and running out
For anyone on enteral feeding or relying on specific formulas and supplements, supply management becomes a second job with real consequences. Reorders route through suppliers, prescribers, and insurers, and none of them move quickly.
Supply tracking with thresholds you set yourself means the warning arrives while there's still time to work the reorder chain.
What Organized.health does for this
Symptom tracking
One tap to log a flare, and a trend you can show a doctor.
My Health Plan
Plan care across every specialist, not one at a time.
Health records
One record covering every provider you have seen.
Commonly alongside this
These conditions frequently overlap. Many people here are managing more than one.
Organized.health helps you organize your health information. It does not provide medical advice, diagnosis, or treatment. Always talk to a qualified healthcare provider about your care.