Living with something chronic
Living with complex regional pain syndrome
CRPS pain shifts and flares without warning. Tools for tracking it, proving the pattern, and managing care across the specialists it takes.
Start tracking →Complex regional pain syndrome is difficult to manage partly because it's difficult to demonstrate. Pain is disproportionate, fluctuating, and invisible on most tests, which means the record you keep is often the strongest evidence of what's actually happening. Care typically spans pain management, neurology, physical therapy, and sometimes psychiatry, with treatment decisions resting on whether symptoms are improving or worsening over months — a question nobody can answer accurately from memory. Organized.health is built to make that record easy to keep on the worst days. Severity logs on a 0–10 scale in a single tap, with timing and contributing factors as fixed choices rather than typing. The trend view then compares recent entries against earlier ones and tells you the direction of travel. That's the answer a pain management appointment actually turns on, and it's much better answered with a chart than with a guess.
Why we know this
Complex regional pain syndrome is one of co-founder Salicia Ford's diagnoses.
Read our story →Tracking pain when typing is the problem
CRPS frequently affects a limb, which means the tracking method matters as much as the tracking itself. An app that needs two hands and precise typing is an app that gets abandoned during exactly the flares worth recording.
Everything is a tap, and a complete entry takes one interaction — so the log reflects your hard days rather than only your manageable ones.
Direction of travel over months
Treatment decisions in CRPS hinge on trajectory. Are things better than three months ago? Almost nobody can answer that honestly from memory, and recency bias means the last bad week tends to dominate.
Comparing recent entries against the preceding period gives a defensible answer rather than an impression.
Records that follow you between specialists
CRPS care crosses several specialties, and new providers routinely want the history before they'll act. Assembling that history from multiple portals, while in pain, is its own barrier to getting treated.
One record covering every provider means a referral doesn't restart the process from nothing.
What Organized.health does for this
Symptom tracking
One tap to log a flare, and a trend you can show a doctor.
My Health Plan
Plan care across every specialist, not one at a time.
Health records
One record covering every provider you have seen.
Commonly alongside this
These conditions frequently overlap. Many people here are managing more than one.
Organized.health helps you organize your health information. It does not provide medical advice, diagnosis, or treatment. Always talk to a qualified healthcare provider about your care.